Would you like to come aboard with us
as we sail the oceans of the world?
We are proud that Neurelis is sponsoring our voyage and we invite all of Neurelis to join us for our primary mission to inspire people with epilepsy, their families, and their caregivers to live a fuller life. The One More Step Challenge isn’t limited to those with epilepsy. We can all challenge ourselves to do something extra, to enrich our lives.
Become a Neurelis Shipmate by participating in our One More Step Challenge and we’ll recognize your courage by adding your name to our hull. Can you take one extra step to do something you haven’t done before, with the necessary guardrails in place?
In the One More Step Challenge…
…we’re asking you to do something to improve your quality of life. Consider our friend Chanda Gunn, from project partner Epilepsy Foundation New England. A former medal winning Olympian, Chanda would like to run a marathon. The challenges she currently faces due to epilepsy have limited her activities, but she is participating in the One More Step Challenge by going for a walk every day.
Phil Haydon has not let post-traumatic epilepsy prevent him from living a full life, either. He is fortunate that his seizures have been controlled for over 40 years. After his injury he found ways to participate in activities he enjoyed, with appropriate modifications. He wore an ice hockey helmet while playing cricket and no fastballs were allowed. As an adult he took sailing lessons – and was hooked.
Phil then gradually expanded into racing and offshore sailing. He carefully monitors his sleep deprivation and ensures he takes his medication on his regular schedule.
We hope that these stories will inspire you to join our One More Step Challenge and embark on your own personal voyage. What will your One More Step be?
Taking One More Step
- Decide to take One More Step
- Define a realistic goal
- Identify challenges you’ll face working towards your goal (practical and medical)
- Talk with your support team (physician, caregiver, family) about appropriate guardrails for safety
- Begin your personal voyage
Become a Neurelis Shipmate
When he casts off, Phil will be sailing for more than himself: he is sailing for anyone else with epilepsy, their families, their caregivers, and anyone who has decided to take an extra step to live a fuller life. He also sails for those who have been lost as a result of epilepsy, to honor their memory and to raise funds for research, so that a future generation of people with epilepsy will have better seizure control.
To recognize everyone’s courage who has accepted the One More Step Challenge, we will add the first name of the participants to our hull so that you can come along for this exciting voyage! The first group of Neurelis Shipmates will be “onboard” with us when we begin sail training again in April 2021.
Sign up by March 10th 2021 to be in the first group of Neurelis Shipmates to have their names added to the hull.
Benefits for Neurelis Shipmates
Not only will your name be added to the hull, but during this summer’s East Coast Expedition, we will pick several Neurelis Shipmates to feature. By sharing your inspirational stories, we will raise awareness not only about epilepsy but about ways that anyone can take steps to live their fullest life possible. Featured Neurelis Shipmates will receive a Sail For Epilepsy and Neurelis flag that was flown on the day they were highlighted, with the noon position and their name written on the flag.
- Employees of Neurelis who participate in the One More Step Challenge will be recognized internally during this challenge. Remember – taking steps along the path to your goal is more important than the end result.
- At the end of the challenge all participating members will receive a special One More Step Challenge t-shirt and be invited to a celebratory event, recognizing their efforts.