One of the ways we will increase awareness of epilepsy is by sharing individual stories related to this disorder. Let’s look beyond statistics and give voice to individual messages of hope, of scientific progress and overcoming challenges. With more knowledge and an increased sense of community, we can all feel like we belong somewhere.
What epilepsy research in being done? How could one mother help find a cure for her son? How can taking small steps lead to achieving bigger goals? What technological advances are being made to support the epilepsy community? These stories and more, in Voices for Epilepsy.
November 25, 2020
Rosalind (Roz) Picard is a Professor in the Media Lab at M.I.T. and has a long history of developing technologies to help society. In this interview, Roz discusses the accidental discovery of a method of detecting seizure activity, resulting in an alert sent to a caregiver that could save a person’s life. The next advancement in this technology may include viral forecasting, to detect viruses like the flu – or Covid-19.
November 11, 2020
Amber Freed, founder of SLC6A1 Connect, provides messages of hope in our first Voices For Epilepsy interview and encourages everyone not to give up. In addition, she gives tips to parents who find that their child has epilepsy. Watch, listen and appreciate the incredible efforts Amber has gone through to energize families and the research community.
The One More Step Challenge: Are you able to take one extra step to do something you haven’t done before, with the necessary guardrails in place?
Celebrate our global community of virtual shipmates who will take their own steps on a personal voyage towards living a fuller life.
The Sail For Epilepsy voyage is one that will cross the world’s oceans. We are all on a journey: between port stops or life’s challenges.