The Sail For Epilepsy voyage is one that will circle the globe. But it is also a mental/emotional passage – for those onboard and for those who will join us virtually. We are all on a journey, whether it be between port stops or life’s challenges. Below you’ll find updates from Phil and the rest of the Sail For Epilepsy team on a wide range of topics, with the common theme of inspiring those with epilepsy to live fuller lives.
Updates from the Boat
- Final Night at Sea
We’re on the last stretch to the finish line. Finally, home waters. - Resilience
The chapter of today’s story is resilience. Last night we had between 2 and 4 knots of wind. And our goal was to keep the boat moving. - A Tough 36 Hours
We had a cold front which pounded everybody. The seas were disorganized. We couldn’t point the boat where we wanted to go. - I Can and I Will
It’s been a frustrating day. We’ve been hand steering for 24 hours because of the sea state. It wouldn’t permit an autopilot to do its job. That’s led to us being quite tired.
Living with Epilepsy
- Learning What to do When Someone is Having a SeizureI cannot overstate the importance of seizure first aid. We are taught many basic life saving techniques starting in early childhood and I believe that… Read more: Learning What to do When Someone is Having a Seizure
- Transitioning Epilepsy Care
As teens with epilepsy become adults, medical care changes. Adult epilepsy care focuses on independence, long-term planning, and adult-specific issues such as driving, work, college, pregnancy, and mental health. Planning ahead helps prevent gaps in care and missed medications.