Become a Virtual Shipmate
A motto that Phil lives by is “I Can and I Will”, something his grandma used to say to him when he was struggling with seizures, the side effects of medication, and falling behind in school. It’s a reminder to anyone living with a disability that you CAN get through a challenge and you WILL overcome it.
Phil still uses this attitude to push himself to live his fullest life possible. He takes One More Step by sailing the oceans of the world. Is there something you CAN do, that you’ve never done before? Decide today that you WILL do it, with the necessary safety measures in place!
Join our crew as a Virtual Shipmate by participating in our One More Step Challenge! To recognize your courage, we’ll add your first name to our boat so that you can come along for this exciting voyage. Click the button below sign up and we’ll add your story (and photo, if you send us one) to the map above after we review your submission.
Not only will your name be added to the boat, but several times during our voyages, we will pick one Virtual Shipmate to feature. By sharing your inspirational stories, we will raise awareness not only about epilepsy but about ways that people with epilepsy aren’t letting this disorder prevent them from living their fullest life possible. Featured Virtual Shipmates will receive a Sail For Epilepsy flag that was flown on the day they were highlighted, with the noon position and their name written on the flag.
I’m taking One More Step by…
Image | Title | Content | Tags |
---|---|---|---|
![]() | Mike |
Go skydiving. Boston, Massachusetts (United States) | adventure |
![]() | Felix |
Doing my blackbelt test. Boston, Massachusetts (United States) | new skill |
![]() | Caroline |
Help pass the bill to have all school & daycare personnel be trained in seizure first aid. Reading, Massachusetts (United States) | advocacy |
![]() | Jaihden |
Advocate for more knowledge in epilepsy awareness. Boston, Massachusetts (United States) | advocacy |
![]() | Javier |
Traveling the world and making people around me happy and cheerful. Orange, Massachusetts (United States) | adventure |
![]() | Steve |
Starting a non-profit foundation for my son, Tyler, and make it a success for him and others. Andover, Massachusetts (United States) | support |
![]() | Cheryl |
Helping Tyler realize just how amazing he is. Supporting him in any way he needs. Helping him fundraise to help others and himself. Andover, Massachusetts (United States) | support |
![]() | Tyler |
Raise a lot of money for epilepsy. Andover, Massachusetts (United States) | support |
![]() | Malcolm |
Eat new foods. Acton, Massachusetts (United States) | health & fitness |
![]() | Stacy |
Doing something every day that scares me. Somerville, Massachusetts (United States) | adventure |
![]() | Joey |
Working hard to support people in my life. North Kingston, Rhode Island (United States) | support |
![]() | Ava |
Starting an online shop once I’m old enough to become more independent. Attleboro, Massachusetts (United States) | new skill |
![]() | Christie |
Teaching Ava to become more independent by teaching her to drive as a first step. Attleboro, Massachusetts (United States) | new skill |
![]() | Jacinta |
Thinking positively. Not giving up and knowing I can do many things. West Roxbury, Massachusetts (United States) | positive attitude |
![]() | Roy |
This year I will be brave enough to go for a sail on Fearless with Phil (if he invites me). Cambridge, Massachusetts (United States) | adventure |
![]() | Jason |
Running more 5k, 10k, half marathon races to raise awareness. Sioux Falls, South Dakota (United States) | health & fitness |
![]() | Robert |
Learning more about my chromosomal mutation that triggers my seizures. Wilmington, Delaware (United States) | education |
![]() | Courtney |
Going to my mental health groups every day they are provided. North Potomac, Maryland (United States) | health & fitness |
![]() | Julie |
Educating women on Catamenial Epilepsy. Idaho Falls, Idaho (United States) | education |
![]() | Mary |
Telling my story. Tribune, Kansas (United States) | awareness |
![]() | John |
Climbing mountains for epilepsy awareness. Sun Prairie, Wisconsin (United States) | awareness, health & fitness |
![]() | Jake |
Learning to play guitar! Uxbridge, Massachusetts (United States) | new skill |
![]() | Bryanna |
Joining the dance club at my college and becoming a nurse in the neurology field to help others dealing with epilepsy! Pelham, New Hampshire (United States) | awareness |
![]() | Heather |
My goal is that I want to make steps towards helping people feel less alone through my poetry books and self help book I have self published. Plainville, Connecticut (United States) | support |
![]() | Denise |
Challenging myself to exercise more. Drayden, Maryland (United States) | health & fitness |
![]() | Jonathan |
I am looking to help the organization in some way. Canal Reach, Hampshire (United Kingdom) | support |
![]() | Jodie |
I am willing to try my best at anything, if it possibly cure my seizures and those of all others… Ellijay, Georgia (United States) | positive attitude |
![]() | Cliff |
Learning abstract algebra and continuing to maintain good mental health through regular exercise, and better self-care. Lancaster, Pennsylvania (United States) | education, health & fitness |
![]() | Kaiden |
Moving out on my own and living a life style free from the anxiety of being alone. I haven’t had a seizure in 3 years but it still remains in the back of my head and frequently pops up giving me panic attacks. Prior Lake, MN (United States) | health & fitness |
![]() | Dorothy |
I live with Epilepsy. For many years I have walked to raise awareness and money for The NW Foundation. My One More Step is to never give up and continue to show support for others living with Epilepsy. Spokane, WA (United States) | support |
![]() | Erika |
Advocating for Epilepsy in SC as Mrs.South Carolina Captivating Queen 2024. Simpsonville, South Carolina (United States) | awareness |
![]() | Heather |
Previous to my myoclonus, I was a great cook and loved being in the kitchen. Fear of my hands jerking has kept me from doing any cooking for a long time. I want to get over that fear (with my rescue med and proper supervision) and realize that I can go one more step. So, I have signed up for a 12-session Culinary Academy. The staff have welcomed me despite the concern and I look forward to starting on July 8. I also look forward to succeeding! Sarasota, Florida (United States) | new skill |
![]() | Remington |
Playing sports and chasing my dream to become a real estate agent. Martinsville, Indiana (United States) | health & fitness, new skill |
![]() | Sequoia |
Finding something I can safely do while having auras and grand mal seizures every month. Nevada City, California (United States) | positive attitude |
![]() | Anya |
Going on my first vacation by myself instead of hiding in my room. Plainfield, Illinois (United States) | positive attitude |
![]() | Robin |
Defining realistic goals. Morris, Connecticut (United States) | positive attitude |
![]() | Vincent |
Clean up my room. New Orleans, Louisiana (United States) | health & fitness |
![]() | Kyler |
Taking a sail in a boat. I have never been before. I have epilepsy. Carville, Louisiana (United States) | adventure |
![]() | Aaron |
Learning more about epilepsy and helping others. St. Gabriel, Louisiana (United States) | education, support |
![]() | Carla |
Walk another mile. Tampa, Florida (United States) | health & fitness |
![]() | Marlin |
Hiking in the west mountains. Tampa, Florida (United States) | health & fitness |
![]() | Jessie |
Be more present. Tampa, Florida (United States) | positive attitude |
![]() | Kayla |
By going to the gym every day. Tampa, Florida (United States) | health & fitness |
![]() | Parker |
Be better at riding a scooter. Tampa, Florida (United States) | new skill |
![]() | Cristina |
Taking more time off work. Seminole, Florida (United States) | health & fitness |
![]() | Gregory |
Be a wide receiver. Tampa, Florida (United States) | new skill |
![]() | Alexandra |
Become a veterinarian. Tampa, Florida (United States) | education |
![]() | Mason |
Get an MD and do research into epilepsy. Valrico, Florida (United States) | |
![]() | Carolina |
Get back into softball and lifting weights. Tampa, Florida (United States) | health & fitness |
![]() | Cristina |
Paddleboarding, hiking, lifting weights. Guam | health & fitness |
![]() | Freya |
I will encourage my son, Joshua, to live his life fully, with safety guardrails, regardless of his epilepsy. I will educate more people about epilepsy. Sarasota, Florida (United States) | |
![]() | Joshua |
Inform more people about epilepsy and how they can help others. Sarasota, Florida (United States) | |
![]() | Evelyn |
To learn more about epilepsy. Sarasota, Florida (United States) | |
![]() | Ellerie |
I can and I will learn to sail. Sarasota, Florida (United States) | |
![]() | Peter |
Get better at my new job to make my mother proud. Sarasota, Florida (United States) | |
![]() | Melanie |
I am going to commit to not allowing my fear of SUDEP impact or limit my son into living a fuller life. Apollo Beach, Florida (United States) | |
![]() | Paige |
Gaining confidence in epilepsy. Sarasota, Florida (United States) | |
![]() | Laura |
Publishing a book that will increase readers’ awareness about epilepsy’s challenges. (More information about the book here) Somerville, Massachusetts (United States) | awareness |
![]() | David |
Educating people about Epilepsy. Rockford, Illinois (United States) | awareness |
![]() | Sophie |
Playing volleyball. Summerville, South Carolina (United States) | health & fitness |
![]() | Isabella |
Educating others about Epilepsy. Monterey Park, California (United States) | awareness |
![]() | Babette |
Doing the 40miles in 40 days challenge for epilepsy. Surrey (United Kingdom) | health & fitness |
![]() | Judi |
Continue my Ski Instructing career. Setting a goal to ski Highland Bowl within a few years. Get past my self-consciousness about seizures, and help others learn more about epilepsy. Aspen, Colorado (United States) | health & fitness |
![]() | Suzanne |
Trying to go for a walk every day to help improve my breathing and gain more exercise. Although I don t have epilepsy, my daughter has has it all her life, with a lot of her seizures being uncontrolled with medication. I’m here to support my daughter through her lifelong journey with epilepsy. Burnaby, BC (Canada) | health & fitness |
![]() | Addie |
I want to be a professional gymnast. Snohomish, WA (United States) | health & fitness, new skill |
![]() | Adrian |
Visiting one new country every year. Monroe, WA (United States) | adventure |
![]() | Matt |
Playing more catch with my dad. Bothell, WA (United States) | health & fitness |
![]() | Owen |
Learn to ride my bike. Everson, WA (United States) | new skill |
![]() | Thalia |
Write her name, address, phone # as well as be able to speak more clearly. Spanaway, WA (United States) | new skill |
![]() | Max |
Making it to the MLB. Seabrook, WA (United States) | health & fitness |
![]() | Gabe |
Coming back to camp next year! Spokane, WA (United States) | adventure |
![]() | Jude |
Share info about epilepsy. Spokane, WA (United States) | awareness |
![]() | Cindy |
Roller skating. Vancouver, BC (Canada) | new skill |
![]() | Grey |
Learn to play guitar with earplugs to reduce sound. Burnaby, BC (Canada) | new skill |
![]() | Jacquoline |
Moving to Thailand. Surrey, BC (Canada) | adventure |
![]() | Beth |
Reaching out / staying in touch with my friends and family that are out of town. Every month I will try and call or message one or more of them. Burnaby, BC (Canada) | health & fitness |
![]() | Francine |
Finding a suitable epileptologist. Surrey, BC (Canada) | health & fitness |
![]() | Arman |
Run a marathon. Learn to rock climb. Victoria, BC (Canada) | health & fitness |
![]() | Garett |
Going to the golf course to practice for the regionals next year in the Special Olympics. Victoria, BC (Canada) | health & fitness |
![]() | Yousuf |
Learning to play the piano. Take classes. Vancouver, BC (Canada) | new skill |
![]() | Randy |
Going on long bike rides in the Frases Valley and Vancouver Island. Burnaby, BC (Canada) | health & fitness |
![]() | Kelly |
Walk 10,000+ steps every day. Canada | health & fitness |
![]() | Jacqueline |
Finishing my bachelors of education degree and proving my school that people with epilepsy can be teachers. Nanaimo, BC (Canada) | education |
![]() | Sonia |
Going to the gym 4x a week. Vancouver, BC (Canada) | health & fitness |
![]() | Derek |
Helping others find what is good about them. Mission, BC (Canada) | support |
![]() | Heather |
Supporting my partner as he rehabs / recovers from a cycling accident. Canada | support |
![]() | Farooq |
Add 1000 arcane words to my vocabulary. Vancouver, BC (Canada) | new skill |
![]() | Monica |
Helping people. Somehow in 2017 I was hit by a car. Seizures were worse before now seizures less, no job but can help do things more now. Burnaby, BC (Canada) | support |
![]() | Carlos |
Doing things more – helping. Burnaby, BC (Canada) | support |
![]() | Megan |
Continue school and go to college, graduate, and play field hockey again. Victoria, BC (Canada) | education |
![]() | Isabel |
Educate and support my child with epilepsy. Educate business owners, CEOs, anyone willing to listen about epilepsy and that people with the condition are capable of achieving anything they put their minds into. Vancouver, BC (Canada) | awareness |
![]() | Marines |
Enjoy life to its fullest! Providence, RI (United States) | positive attitude |
![]() | Manuel |
Slowly cure my epilepsy for good by following healthy measures. Dedham, MA (United States) | health & fitness |
![]() | Bruce |
Learning to sail. Rhode Island (United States) | new skill |
![]() | Bill |
Promoting seizure safe schools. Newport, RI (United States) | advocacy |
![]() | Brian |
Following Phil! Maumee, Ohio (United States) | support |
![]() | Edward |
I was diagnosed Epileptic at 6 years old had post Epileptic traumatisim I have been living a normal life for 24 years now on medication. Cambridgeshire (United Kingdom) | health & fitness |
![]() | Julia |
Finding help and support to believe in myself and say I can instead of I can’t. Edingale Tamworth, Staffordshire (United Kingdom) | health & fitness |
![]() | Jane |
Having epilepsy has not stopped me doing anything always been very sporty despite having active and fluctuating epilepsy which is now controlled. My next step is for my voice and be heard about the injustice I faced in employment and be a voice for others who don’t have a voice. Southport (United Kingdom) | advocacy, awareness |
![]() | Amy |
Getting more families involved in sports and recreation (those living with epilepsy)! Conway, NH (United States) | support |
![]() | Lisa |
Spreading awareness about epilepsy and committing to have my staff epilepsy first aid certified. Londonderry, NH (United States) | awareness, new skill |
![]() | Baxter |
More music – like learning the guitar More adventures – like sailing and water skiing More food – different exciting flavors Western MA (United States) | new skill |
![]() | Jeff |
Find a career that I enjoy and be successful in. Regain my independence. Sanford, ME (United States) | new skill |
![]() | Amy |
Repel off a building to raise money for epilepsy foundation. Tyngsboro, MA (United States) | support |
![]() | Tyler |
Working hard to keep my room a little neater. York, ME (United States) | new skill |
![]() | Anja |
Remembering my medications and be really aware of the food I’m putting in my body maybe try a ketosis diet I’ve heard promising things in its affect with epilepsy. Coquitlam, BC (Canada) | health & fitness |
![]() | Em-Rose |
Conquering my anxiety and focusing on self care, and also continuing to support Jeff with his battle with epilepsy. Sanford, ME (United States) | health & fitness, support |
![]() | Nicole |
Continuing to teach everyone I know about this illness/disease. Littlestown, PA (United States) | awareness |
![]() | Donna |
Stop isolating myself so much because of my seizures. And get out and become active again. Plant City, Florida (United States) | health & fitness |
![]() | Joseph |
Learn about sailing. London, Ontario (Canada) | education |
![]() | Megan |
Spreading epilepsy awareness every chance I get. Hull, Massachusetts (United States) | awareness |
![]() | Eryn |
Aiming to get my dinghy instructor to help other children learn to sail. Bexley Kent (United Kingdom) | new skill |
![]() | Celine-Eva |
Keep breathing despite being really scared about my epilepsy. Freshwater NSW (Australia) | positive attitude |
![]() | Laura |
Educate my patients. St. Cloud, Florida (United States) | education |
![]() | Lynn |
I want to be a speaker in a large groups such as Expos and Conferences about Epilepsy Awareness, and Epilepsy and Suicide, as I am the survivor of a suicide attempt due to my Epilepsy and depression. I want people to know it’s okay to not be okay, and to let others know they need help. Ball Ground, Georgia (United States) | awareness, positive attitude, support |
![]() | Taryn |
Remember. Davenport, FL (United States) | memoriam |
![]() | Cassidy |
Go for more hikes / walks. Halifax, Nova Scotia (Canada) | health & fitness, walk / run |
![]() | Malea |
Horseback riding off the lead. Saint Cloud, FL (United States) | adventure |
![]() | Holly |
Travel in an RV across the U.S. Monson, MA / Port Orange, FL (United States) | adventure |
![]() | Angela |
Not overdoing and keeping rested. Apopka, FL (United States) | health & fitness |
![]() | Jenn |
Doing yoga and guided meditations at least 3 times per week and stay on my diet, Optavia. Mandeville, Louisiana (United States) | health & fitness |
![]() | Karla |
Continue to take my medicine and keep it in my mind that this can happen at anytime with no notice. Willimantic, Connecticut (United States) | health & fitness |
![]() | Carol |
Sailing each week that weather permits and timing off work. My daughter was diagnosed with epilepsy a little over a year ago. (United States) | |
![]() | Sue |
Sharing my lifetime experience with Epilepsy and encouraging others. Berlin, Massachusetts (United States) | awareness |
![]() | Newman |
Sharing my story. Pottstown, PA (United States) | awareness |
![]() | Alina |
Helping those that need it but first to help myself. Reno, Nevada (United States) | support |
![]() | Renata |
Take a boat trip one day. And learn how to sail. Lisbon (Portugal) | adventure, new skill |
![]() | Pedro |
To support my 16y son Afonso in his challenge to live with epilepsy. Cichoeiras (Portugal) | support |
![]() | Isa |
Demystifying epilepsy. Portugal | awareness |
![]() | Gabrial |
Study to be a scientist. Lisbon (Portugal) | education |
![]() | Grisham |
I want everyone to understand epilepsy and for my brother not to have any more seizures. Portugal | awareness |
![]() | Teresa |
To become a neuro-pediatrician. Almada (Portugal) | education |
![]() | Luisa |
Accept my condition and that of my partner. Find a way to work through the motor difficulties of everyday life. Almada (Portugal) | positive attitude |
![]() | Nuno |
Talking to more people about epilepsy. Portugal | awareness |
![]() | Maria |
Learning to play basketball. Portugal | health & fitness, new skill |
![]() | Rute |
Helping my daughter to be proud of herself and to continue to believe that anything is possible. Portugal | support |
![]() | Aurora |
I hope my brother doesn’t have any more seizures. Sines (Portugal) | support |
![]() | Tânia |
Talking more about epilepsy with everyone! Sines (Portugal) | awareness |
![]() | Jorge and Mileida |
To our daughter: “You can do it! Go!” We are here for you. Almada (Portugal) | support |
![]() | Huga |
Getting a driver’s license and taking Henrique to the stadium. Amora (Portugal) | new skill |
![]() | Elsa |
Doing yoga to be more resilient. Amora (Portugal) | health & fitness |
![]() | Henrique |
Learning to swim. Amora (Portugal) | health & fitness, new skill |
![]() | Pedro |
Slimming the belly. Aroeira (Portugal) | health & fitness |
![]() | Maria |
Continuing epilepsy awareness for my patients and the community. Help them take one more step. Almada (Portugal) | awareness |
![]() | Margarida |
Organizing an awareness session on Epilepsy at my nephew Samuel’s school later this year. Setúbal, Portugal | awareness |
![]() | Samuel |
Having a party and swimming with the dolphins. Portugal | adventure |
![]() | Dina |
Finding a weekly time for exercise. Aveiro (Portugal) | health & fitness |
![]() | Wojtaszek |
Better healing. Lisbon (Portugal) | health & fitness |
![]() | Alix |
Travel around the world see other cultures and learn about them. Agueda (Portugal) | adventure |
![]() | Puolo |
Helping my son to learn how to swim. Amora (Portugal) | new skill, support |
![]() | Bitocas |
Make more travels with creativity. Agueda (Portugal) | adventure |
![]() | Ana |
Educate people about epilepsy. Lisbon (Portugal) | education |
![]() | Pedro |
Learn to ride a bicycle. Lisbon (Portugal) | new skill |
![]() | Francisco |
Be able to drive a car. Lisbon (Portugal) | new skill |
![]() | Carla |
Helping epilepsy patients. Portugal | support |
![]() | Afonso |
Eventually be a doctor when I get older so I can get to know more about epilepsy and help the people with it. Lisbon (Portugal) | education |
![]() | Miguel |
Keep opening my kids minds to such important initiatives as Sail 4 Epilepsy. Lisbon (Portugal) | education |
![]() | Joana |
Doing my best to enroll in medical school. Then I can be an investigator in the neuroscience (or psychiatry) field. Lisbon (Portugal) | education |
![]() | Francisco |
Keep on pursuing my dreams & never giving up. I’ll do my best to fulfill my dream of being able to speak the most languages possible. Lisbon (Portugal) | new skill |
![]() | Filipa |
To share my knowledge and daily experiences that are related to epilepsy. To allow my children to have new experiences. Portugal | awareness |
![]() | Jorge |
I will practice more soccer. Portugal | health & fitness |
Mariana |
I will start dancing again. Portugal | health & fitness | |
![]() | Salomé |
I wish my brother didn’t have epilepsy anymore. Sines (Portugal) | support |
![]() | Daniel |
I will help my girlfriend who has epilepsy to finish the course she is taking. Aveiro (Portugal) | education |
![]() | Maria |
By supporting / encouraging people with epilepsy. Marrakech (Morocco) | support |
![]() | Soumia |
Helping people in need. Marrakech (Morocco) | support |
![]() | Fatima |
To spread awareness and educate people I know. Marrakech (Morocco) | awareness |
![]() | Aicha |
Talking / sharing about the charity through social media. Marrakech (Morocco) | awareness |
![]() | Imad |
For people with epilepsy. Marrakech (Morocco) | support |
![]() | Chama |
Diet and nutrition. Marrakech (Morocco) | health & fitness |
![]() | Abderrazzak |
Going on a long trip by boat in order to help people with epilepsy. Marrakech (Morocco) | awareness |
![]() | Malak |
I would like to help people as much as I can. Marrakech (Morocco) | support |
![]() | Lamya |
Help patients struggling with chronic diseases. Marrakech (Morocco) | support |
![]() | Iourdane |
Open a center for cooperation with people in need of medical help. Marrakech (Morocco) | support |
![]() | Radia |
I would like to be more outgoing. Marrakech (Morocco) | health & fitness |
![]() | Nacertazi |
I would like to work out more and be in my best shape ever. Marrakech (Morocco) | health & fitness |
![]() | Chaimaa |
Learn surfing and manage my stress. Marrakech (Morocco) | new skill |
![]() | Maarouf |
I wish for all epileptic people to be happy, fearless, and find the support they need! Marrakech (Morocco) | support |
![]() | Katelyn |
Building a successful career. Castro Valley, CA (United States) | career |
![]() | Julie |
In memory of my brother Danny Tromberg who lost his life to epilepsy-related complications at the young age of 45. He was a warrior who didn’t want to let epilepsy define him. All he wanted was a cure. Princeton, NJ (United States) | memoriam |
![]() | Diane |
Never giving up and always keep learning. Continue to help others in extraordinary ways. Childhood epilepsy did not define me ~ it inspired me. I hiked, went whitewater rafting, volunteered, made bread, created memorable community events, gardened, skated, danced & had fun! Nearly 50 years later, I continue to create, inspire & explore. | positive attitude |
![]() | Audrey |
Start lean to sail in this year. Brazil | new skill |
![]() | Juliana |
1 more step to the infinite. The will to reach my goal which is to drive and stop being anxious. Manage to contain the sensation of heat rising up my body and absorb my emotion as I reach the relief of tension. I need to divert my thoughts when I feel like I’m going to have an episode of epilepsy. Porto, Portugal | positive attitude |
![]() | João |
Professional success in the work that I always aspired to have. Porto, Portugal | |
![]() | Maria |
Walk to Santiago de Compostela. Porto, Portugal | new experience |
![]() | Catarina |
Swim at the beach. Porto, Portugal | new experience |
![]() | Carlos |
Live life. Porto, Portugal | positive attitude |
![]() | Rosa |
Ride in a big boat. Porto, Portugal | new skill |
![]() | Maria |
Accept epilepsy to better deal with it. Vila do Conde, Portugal | positive attitude |
![]() | Cristina |
Practice more exercise. Porto, Portugal | health & fitness |
![]() | Nelson |
Swim in the ocean. Porto, Portugal | new skill |
![]() | Joaquim |
I would like to work and be able to do training in the area of electricity. Porto, Portugal | new skill |
![]() | Tomás |
Study more. Porto, Portugal | education |
![]() | Ana |
Teach people about epilepsy. Póvoa de Varzim, Portugal | education |
![]() | Joana |
It was to have more knowledge regarding my illness and spread the word. Because epilepsy is not a monster, we can have some capabilities and accomplish important things. Porto, Portugal | awareness |
![]() | Alfredo |
I would like to be self-employed. Porto, Portugal | new skill |
![]() | José |
Participate in Sail For Epilepsy. Guimarães, Portugal | awareness |
![]() | Paulo |
If I can stay a year without seizures, I’ll get my driver’s license and I’ll do something that is my childhood dream, skydiving jump. Porto, Portugal | new skill |
![]() | Salomé |
Personal and growth development. Porto, Portugal | positive attitude |
![]() | Cláudia |
Join as a volunteer in the Portuguese League Against Epilepsy (LPCE). Lisbon, Portugal | support |
![]() | Elisabete |
Helping inform others here on the island of Pico, Azores. Pico, Azores (Portugal) | awareness |
![]() | Rita |
Marry! Portimão, Portugal | |
![]() | Samantha |
Going for (at least) a 30 minute walk every day. Plano, Texas (United States) | health & fitness |
![]() | David |
Never letting my epilepsy from stopping me from what I love to do. Parma, Ohio (United States) | positive attitude |
![]() | Sawyer |
Publish a comic book. Falmouth, ME | new skill |
![]() | Scott |
Serving on the Epilepsy Foundation DC advisory board as well as facilitate epilepsy support group meetings. Columbia, MD | advocacy |
![]() | Seamus |
I will continue to educate and raise awareness. Philadelphia, PA | awareness |
![]() | Shay |
Continuing to support families and find creative ways to help. Annapolis, MD | advocacy |
![]() | Stacey |
I would like my child to not have a nurse follow her around when she goes to middle school next year. | support |
![]() | Tara |
Family and friends to be more patient with me. | positive attitude |
![]() | Thomas |
Supporting my brother through his epilepsy. Barrington, RI | support |
![]() | Tim |
Hike the Appalachian Trail. Gorham, ME | health & fitness |
![]() | Tom |
Supporting our grandson’s effort to overcome his issues with epilepsy. | |
![]() | Waylon |
Teaching my classmates and friends about epilepsy. Pittsfield, MA | awareness |
![]() | Zackary |
Keeping my room clean. Billerica, MA (United States) | |
![]() | Aria |
Living every day to the fullest to the best of my ability with my family and friends. Every day Aria has approximately 5 to 10 seizures daily with her syndrome (Aicardi). She is 1 in 4000 and a ray of sunshine to all who meets her. She is a blessing to all of us! Croydon, IN (United States) | positive attitude |
![]() | Natalie |
Continuing to show that despite having epilepsy you can have a successful career and a good life. I will as an entrepreneur continue to work to create resources for people with epilepsy, with the goal of helping them improve their quality of life. I will continue to work on myself by expanding my education and live my life to the fullest. Epilepsy will not stop me, I will defeat epilepsy. Rancho Cucamonga, CA (United States) | advocacy |
![]() | Cella |
We are the Scroggs Family, and we would like the opportunity to have our beautiful princess Cella remembered by adding her name on this journey. She gained her Angel wings in October 2020 due to complications of Aicardi syndrome. Thank you. Clayton, GA (United States) | memoriam |
![]() | Abigail |
Trying to walk on my own. I have a severe form of epilepsy caused by my DeNovo mutation on my SCN8A gene. Hope Valley, RI (United States) | new skill |
![]() | Caroline |
Continuing to blog more openly about my epilepsy paired with the necessity of building and maintaining solid health and well-being habits to other women with epilepsy. Grand Rapids, MI (United States) | awareness |
![]() | Kieron |
Success in the fight against epilepsy. Plymouth, Devon (United Kingdom) | awareness |
![]() | Jennifer |
Raising money for Epilepsy Foundation of South Florida. Fort Lauderdale, FL (United States) | awareness |
![]() | Jocelyn |
Learning to operate a motor racing simulator. Gloucestershire (United Kingdom) | new skill |
![]() | Teresa |
Leading a healthy lifestyle with diet, exercise, and respect for myself with what I accomplish daily. Coral Springs, FL (United States) | positive attitude |
![]() | Lisa |
Volunteering at Brainy Camp, an overnight camp for kids with epilepsy. I’ve not been away from my husband for more than six days since diagnosis so 10 days will be a bit stressful, despite neuro docs & nurses on staff. I want to show kids that a 57 y/o woman w/ epilepsy can do ropes courses, sports, etc—while providing parents some respite. Silver Spring, MD (United States) | positive attitude |
![]() | Billie Jo |
Continuing to focus on my emotional, spiritual, mental & physical health and improving myself in well many ways and remaining seizure free. I am taking classes again to up-skill and try to help with the memories that seem to evade me or seem lost at times. Continuing on and not giving up on life. Inyokern, CA (United States) | positive attitude |
![]() | Jared |
Never letting my epilepsy define me. I’ve gone 6 months seizure-free. Only the 2nd time in 22 years I have gone so long without one. I will continue to share Seizure 1st aide with those around me and to break the stigma of what epilepsy looks or doesn’t look like! North Charleston, SC (United States) | awareness |
![]() | Lauro |
Navegar sem limites. Paranagua, PR (Brazil) | new skill |
![]() | Phil |
Sail the oceans of the world, to inspire people with epilepsy, raise awareness, and educate the general public. Boston, MA (United States) | awareness |
![]() | Zsatara |
Keeping Zsatara’s memory not just alive….but thrive. Milton, MA (United States) | memoriam |
![]() | West |
West will try to eat and work on her vocalizing. North Windham, CT (United States) | new skill |
![]() | Tyler |
Learning to play the drums. Midrand, Gauteng (South Africa) | new skill |
![]() | Todd |
Making awareness and control of epilepsy. Sudbury, Suffolk (United Kingdom) | awareness |
![]() | Tatyanna |
I’m going to take One More Step by always helping others, and spreading the importance of Epilepsy support. Southbury, CT (United States) | awareness |
![]() | Sonny |
Continuing to raise awareness in our community by starting with my school, so the coaches know what to do if I have a seizure, as well as my teachers knowing how to respond without the assistance of my brothers. Clarksville, TX (United States) | awareness |
![]() | Sean |
Switch over medication to improve my mental health while better controlling my seizures as they progress. Bruce Mines, Ontario (Canada) | health & fitness |
![]() | Sean |
I have recently signed up and been accepted in the Clipper Round the World yacht race taking part in 2023. It was tough getting through the medical but I had the support of my doctor. I have never sailed before so have a lot to learn and they do provided excellent training. I will be raising sponsorship money for an Epilepsy charity hopefully a local one to me who supports people to enjoy life to the full despite the challenges of the illness. Yorkshire (United Kingdom) | awareness |
![]() | Sarah |
I’m a psychotherapist in Washington, DC. I grew up in Plymouth, MA and am a lifelong sailor & equestrian. After years of controlled seizures, I had one in Oct 2021, right after resuming jumping lessons for the first time in almost 20 years. With the help of a nicer helmet, a kind trainer, some intuitive horses, a fabulous Neuro, & my wonderful cousin, Lilly, I’m back in the saddle & looking forward to our first show! Washington, DC (United States) | health & fitness |
![]() | Roberto |
By being brave and courageous , I have epilepsy and am battling stage 4 cancer.. I would be honored to represent the strength of others who have had epilepsy in their lives. Bartow, FL (United States) | positive attitude |
![]() | Ricardo |
Entro com o objetivo de combater ao máximo este preconceito para com a doença e convida-lo a vir visitar o meu Salão de Cabeleireiro que em breve vou inaugurar na cidade do Porto. Matosinhos (Portugal) | awareness |
![]() | Paul |
Creating an event for children with epilepsy this summer. Maple Shade, NJ (United States) | awareness |
![]() | Nolan |
My seizures come in many forms and for 3 years my tonic clonics took away a lot from me life as they happened frequently. By some miracle it’s been 15 weeks since my last tonic clonic and finally have hope I can do more things I miss and love. My One More Step is I’m going to start roller blading again (with safety gear on). Hopefully if I continue to not experience tonic clonics, I can finally go snow boarding again as well. I’m just looking forward to being or active in general. Fall River, MA (United States) | health & fitness |
![]() | Michael |
Walking with grandma and the dogs. I have a wheelchair I use if I walk too far because of my spina bifida, but I will try my best to at least walk 5 minutes everyday. Beaverton, OR (United States) | walk / run |
![]() | Matthew |
Keep smiling. Devon (United Kingdom) | positive attitude |
![]() | Matilda |
Matilda (age10) made the decision herself to take on any new challenge. She has already climbed an over hang, learnt to paddle board and hiked. Her biggest challenge is admitting her Epilepsy to her friends. She will learn to sail a keel boat, but at the same time will have to admit her Epilepsy. Epsom, Surrey (United Kingdom) | health & fitness |
![]() | Madeline |
Continuing to raise awareness about Epilepsy in school, my community and social media. I will also continue to show my peers and myself that Epilepsy doesn’t define me nor will it stop me from living my life on my terms. Marietta, GA (United States) | awareness |
![]() | Loretta |
I’m going to start taking my dogs to the park on as many days as the weather allows. There are registered support animals. Cincinnati, OH (United States) | health & fitness |
![]() | Lyndsey |
Enlisting my 19 year old daughter Lyndsey as a Virtual Shipmate!! She is my hero and inspiration to do more, to educate everyone about Epilepsy, especially Seizure First Aid. She changed the status quo in KY as the first state to pass Seizure Safe School legislation, The Lyndsey Crunk Act. Her willingness to share her story inspires so many. Although she’s seizure free now for over 5.5 years, (with medication) she battles the remnants of epilepsy every day. She is my Hero!!! Georgetown, KY (United States) | advocacy |
![]() | Lee |
Try to ride a bike, again. When I switched to an adult bike I had grown 12 inches. I’m very afraid of falling now. I will probably get a new bike that I can sit up straight on. | biking |
![]() | Laura |
I wear purple for awareness for epilepsy. It’s small but I believe every little thing matters. I have had epilepsy for 40 years. Westfield, MA (United States) | awareness |
![]() | Kiana |
I am going to continue to overcome and not let epilepsy bring me down. Never give up! Scotia, NY (United States) | positive attitude |
![]() | Julia |
I am 11 years old. I would like to be a trauma surgeon one day and I would like to support the people who are going through this sickness. Garfield, NJ (United States) | education |
![]() | Joannie |
I am going to do NIA a Body Mind Soul non impact aerobics. Port Jefferson, NY (United States) | health & fitness |
![]() | Jasmine |
Starting a charity in Bermuda to bring those with epilepsy together to support each other and share their stories. Bermuda | awareness |
![]() | Jamie |
Trying to get out in nature more often such as riding horses or taking a walk when I can’t get out to the barn. Yorktown, VA (United States) | health & fitness |
![]() | Jaime |
Living my life and not letting my epilepsy upset me!! I had a grand mal seizure in my sleep over 23 years ago that was later diagnosed as Epilepsy. I had to leave my job in sales. I have been home for over 12 years. I have not driven since then after having a seizure at the wheel with my children and nephew in the car, I was approved for disability and take my meds daily, meet with neurologist, have all my MRI and any other appts but never let myself worry “will a seizure happen today”. With every seizure I have the more I forget and always ask the same questions over and over…but it’s OK! Haverhill, MA (United States) | positive attitude |
![]() | Helen |
Walking 100 mile for Epilepsy Society Charity. To raise money. Leeds (United Kingdom) | walk / run |
![]() | Heidi |
Continue running 5k 5x/week to overcome Epilepsy and recover from a broken hip. Hampton, NH (United States) | walk / run |
![]() | Hayden |
My son Hayden died of SUDEP, aged 20. He had to leave his college course due to his seizures disrupting class. He used his free time to visit elderly care homes with his dog as a pets as therapy dog. He spent a lot of time with his little sister who was only three when he died. He was an amazing son, who’s ashes are scattered at sea so that he can travel like he always wanted to do. Ammanford, Carmarthenshire (United Kingdom) | memoriam |
![]() | Haley |
Never giving up. Danbury, CT (United States) | positive attitude |
![]() | Grant |
I am Grant and I have intractable epilepsy. I don’t let it define me nor anyone else. Nashville, TN (United States) | positive attitude |
![]() | Geoff |
Learning more about ADHD and helping my son conquer it. Milton, MA (United States) | parent |
![]() | Erick |
I would like to remember and honor my 20 year old grandson Erick who died from SUDEP on Jan 24, 2015. Schwenksville, PA (United States) | memoriam |
![]() | Eddie |
Walk 100km in June 2021. NE Lincolnshire (United Kingdom) | walk / run |
![]() | Conlan |
Exercising more. I started taking skiing lessons. I always wear my helmet. Everyday I make sure to do some type of exercise. If the weather is bad I ride my indoor bike. Revere, MA (United States) | health & fitness |
![]() | Catherine |
Ensuring my daughter lives her life to her greatest potential. Bridgewater, MA (United States) | parent |
![]() | Cassandra |
Living daily by my personal motto: “While I can’t control what happens to me in life, I CAN control how I respond”. I will use creative arts to turn obstacles into new successes. Portsmouth, NH (United States) | positive attitude |
![]() | Brandon |
Going to college and writing my second book about my life. Somerset, MA (United States) | education |
![]() | Bleu |
My 6 year old son Bleu is going to start swimming every week! He has a brain tumor, CP, Hydrocephalus, ASD, a visual impairment and Epilepsy. He’s our inspiration. Middlesex (United Kingdom) | health & fitness |
![]() | Berta |
After being seizure free for a year and a half I am pursuing a degree in UX Design so that I can contribute to designing better technologies to help people living with Epilepsy have a better quality of life. New Bedford, MA (United States) | education |
![]() | Anthony |
Continuing to show up every day as a brave 6-year-old who deals with the fears of doctors appts, needles, and epilepsy related issues. Milford, CT (United States) | positive attitude |
![]() | Addyson |
I am going to spread awareness about epilepsy at school. Glen Burnie, MD (United States) | awareness |