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Become a Virtual Shipmate

Join our crew as a Virtual Shipmate by participating in our One More Step Challenge! To recognize your courage, we’ll add your first name to our boat so that you can come along for this exciting voyage. Click the button below sign up and we’ll add your story (and photo, if you send us one) to the map above after we review your submission.

Can you take one extra step to do something you haven’t done before, with the necessary safety measures in place?

Not only will your name be added to the boat, but several times during our 2022 voyages, we will pick one Virtual Shipmate to feature. By sharing your inspirational stories, we will raise awareness not only about epilepsy but about ways that people with epilepsy aren’t letting this disorder prevent them from living their fullest life possible. Featured Virtual Shipmates will receive a Sail For Epilepsy flag that was flown on the day they were highlighted, with the noon position and their name written on the flag.


I’m taking One More Step by…

Virtual ShipmateNameOne More StepTopic
Lauro

Navegar sem limites.

Paranagua, PR (Brazil)

Phil

Sail the oceans of the world, to inspire people with epilepsy, raise awareness, and educate the general public.

Boston, MA (United States)

Zsatara

Keeping Zsatara’s memory not just alive….but thrive.

Milton, MA (United States)

West

West will try to eat and work on her vocalizing.

North Windham, CT (United States)

Tyler

Learning to play the drums.

Midrand, Gauteng (South Africa)

Todd

Making awareness and control of epilepsy.

Sudbury, Suffolk (United Kingdom)

Tatyanna

I’m going to take One More Step by always helping others, and spreading the importance of Epilepsy support.

Southbury, CT (United States)

Sonny

Continuing to raise awareness in our community by starting with my school, so the coaches know what to do if I have a seizure, as well as my teachers knowing how to respond without the assistance of my brothers.

Clarksville, TX (United States)

Sean

Switch over medication to improve my mental health while better controlling my seizures as they progress.

Bruce Mines, Ontario (Canada)

Sean

I have recently signed up and been accepted in the Clipper Round the World yacht race taking part in 2023. It was tough getting through the medical but I had the support of my doctor. I have never sailed before so have a lot to learn and they do provided excellent training. I will be raising sponsorship money for an Epilepsy charity hopefully a local one to me who supports people to enjoy life to the full despite the challenges of the illness.

Yorkshire (United Kingdom)

Sarah

I’m a psychotherapist in Washington, DC. I grew up in Plymouth, MA and am a lifelong sailor & equestrian. After years of controlled seizures, I had one in Oct 2021, right after resuming jumping lessons for the first time in almost 20 years. With the help of a nicer helmet, a kind trainer, some intuitive horses, a fabulous Neuro, & my wonderful cousin, Lilly, I’m back in the saddle & looking forward to our first show!

Washington, DC (United States)

Roberto

By being brave and courageous , I have epilepsy and am battling stage 4 cancer.. I would be honored to represent the strength of others who have had epilepsy in their lives.

Bartow, FL (United States)

Ricardo

Entro com o objetivo de combater ao máximo este preconceito para com a doença e convida-lo a vir visitar o meu Salão de Cabeleireiro que em breve vou inaugurar na cidade do Porto.

Matosinhos (Portugal)

Paul

Creating an event for children with epilepsy this summer.

Maple Shade, NJ (United States)

Nolan

My seizures come in many forms and for 3 years my tonic clonics took away a lot from me life as they happened frequently. By some miracle it’s been 15 weeks since my last tonic clonic and finally have hope I can do more things I miss and love. My One More Step is I’m going to start roller blading again (with safety gear on). Hopefully if I continue to not experience tonic clonics, I can finally go snow boarding again as well. I’m just looking forward to being or active in general.

Fall River, MA (United States)

Michael

Walking with grandma and the dogs. I have a wheelchair I use if I walk too far because of my spina bifida, but I will try my best to at least walk 5 minutes everyday.

Beaverton, OR (United States)

Matthew

Keep smiling.

Devon (United Kingdom)

Matilda

Matilda (age10) made the decision herself to take on any new challenge. She has already climbed an over hang, learnt to paddle board and hiked. Her biggest challenge is admitting her Epilepsy to her friends. She will learn to sail a keel boat, but at the same time will have to admit her Epilepsy.

Epsom, Surrey (United Kingdom)

Madeline

Continuing to raise awareness about Epilepsy in school, my community and social media. I will also continue to show my peers and myself that Epilepsy doesn’t define me nor will it stop me from living my life on my terms.

Marietta, GA (United States)

Loretta

I’m going to start taking my dogs to the park on as many days as the weather allows. There are registered support animals.

Cincinnati, OH (United States)

Lyndsey

Enlisting my 19 year old daughter Lyndsey as a Virtual Shipmate!! She is my hero and inspiration to do more, to educate everyone about Epilepsy, especially Seizure First Aid. She changed the status quo in KY as the first state to pass Seizure Safe School legislation, The Lyndsey Crunk Act. Her willingness to share her story inspires so many. Although she’s seizure free now for over 5.5 years, (with medication) she battles the remnants of epilepsy every day. She is my Hero!!!

Georgetown, KY (United States)

Lee

Try to ride a bike, again. When I switched to an adult bike I had grown 12 inches. I’m very afraid of falling now. I will probably get a new bike that I can sit up straight on.

Laura

I wear purple for awareness for epilepsy. It’s small but I believe every little thing matters. I have had epilepsy for 40 years.

Westfield, MA (United States)

Kiana

I am going to continue to overcome and not let epilepsy bring me down. Never give up!

Scotia, NY (United States)

Julia

I am 11 years old. I would like to be a trauma surgeon one day and I would like to support the people who are going through this sickness.

Garfield, NJ (United States)

Joannie

I am going to do NIA a Body Mind Soul non impact aerobics.

Port Jefferson, NY (United States)

Jasmine

Starting a charity in Bermuda to bring those with epilepsy together to support each other and share their stories.

Bermuda

Jamie

Trying to get out in nature more often such as riding horses or taking a walk when I can’t get out to the barn.

Yorktown, VA (United States)

Jaime

Living my life and not letting my epilepsy upset me!! I had a grand mal seizure in my sleep over 23 years ago that was later diagnosed as Epilepsy. I had to leave my job in sales. I have been home for over 12 years. I have not driven since then after having a seizure at the wheel with my children and nephew in the car, I was approved for disability and take my meds daily, meet with neurologist, have all my MRI and any other appts but never let myself worry “will a seizure happen today”. With every seizure I have the more I forget and always ask the same questions over and over…but it’s OK!

Haverhill, MA (United States)

Helen

Walking 100 mile for Epilepsy Society Charity. To raise money.

Leeds (United Kingdom)

Heidi

Continue running 5k 5x/week to overcome Epilepsy and recover from a broken hip.

Hampton, NH (United States)

Hayden

My son Hayden died of SUDEP, aged 20. He had to leave his college course due to his seizures disrupting class. He used his free time to visit elderly care homes with his dog as a pets as therapy dog. He spent a lot of time with his little sister who was only three when he died. He was an amazing son, who’s ashes are scattered at sea so that he can travel like he always wanted to do.

Ammanford, Carmarthenshire (United Kingdom)

Haley

Never giving up.

Danbury, CT (United States)

Grant

I am Grant and I have intractable epilepsy. I don’t let it define me nor anyone else.

Nashville, TN (United States)

Geoff

Learning more about ADHD and helping my son conquer it.

Milton, MA (United States)

Erick

I would like to remember and honor my 20 year old grandson Erick who died from SUDEP on Jan 24, 2015.

Schwenksville, PA (United States)

Eddie

Walk 100km in June 2021.

NE Lincolnshire (United Kingdom)

Conlan

Exercising more. I started taking skiing lessons. I always wear my helmet. Everyday I make sure to do some type of exercise. If the weather is bad I ride my indoor bike.

Revere, MA (United States)

Catherine

Ensuring my daughter lives her life to her greatest potential.

Bridgewater, MA (United States)

Cassandra

Living daily by my personal motto: “While I can’t control what happens to me in life, I CAN control how I respond”. I will use creative arts to turn obstacles into new successes.

Portsmouth, NH (United States)

Brandon

Going to college and writing my second book about my life.

Somerset, MA (United States)

Bleu

My 6 year old son Bleu is going to start swimming every week! He has a brain tumor, CP, Hydrocephalus, ASD, a visual impairment and Epilepsy. He’s our inspiration.

Middlesex (United Kingdom)

Berta

After being seizure free for a year and a half I am pursuing a degree in UX Design so that I can contribute to designing better technologies to help people living with Epilepsy have a better quality of life.

New Bedford, MA (United States)

Anthony

Continuing to show up every day as a brave 6-year-old who deals with the fears of doctors appts, needles, and epilepsy related issues.

Milford, CT (United States)

Addyson

I am going to spread awareness about epilepsy at school.

Glen Burnie, MD (United States)

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