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Trudy Robinson, sailor
Sailing with Ali Like many others, I was not born with epilepsy. I had my first seizure when I was 17 during my senior year of high school. My three best girlfriends and I decided to go up to the Boston Museum of Science for the day. While we were there we went to a …
Chanda Gunn, Epilepsy Foundation New England
Chanda Gunn is an accomplished ice hockey player known for overcoming obstacles on and off the rink. When she was nine, she was diagnosed with having both absence and grand mal seizures which were controlled with medication. Unfortunately, she experienced a series of tonic-clonic seizures and had to drop out of college to regain control …
Bacon, Mayonnaise and Avocados: Good for the Epileptic Brain?
Source: Epilepsy.com There is more and more interest in the use of a diet to control epilepsy that is not controlled by currently prescribed medications. But this is not a new idea: if we roll back the clock, the first reports of diet affecting seizures were made ~500B.C..  In the early 1900s, the use of diet to control …
Did You Know That There are Many Types of Epilepsy?
When someone says the word “seizure”, what do you think of? Does the idea make you feel anxious or scared? Many people think that seizures only come in one form, those in which the person loses consciousness, falling to the floor with muscle contractions that cause them to jerk and shake. Previously called grand mal …
Be Your Own Best Advocate
In 2011, I returned from an international trip and within 24 hours found myself in the hospital with a severe allergic reaction. Large regions of my skin were swollen and ranged in color from red to purple. I was exhausted and scared when I arrived in the emergency room. I was rapidly put under the …
My Journey With Epilepsy
Unless you ask me about the scar on my head, you might never know I have epilepsy. The mark left by a thrown brick and subsequent metal plate that had to be inserted in my head serve as a visual reminder of the day my journey with epilepsy began, nearly 45 years ago. I consider myself fortunate because my epilepsy is …
Finding Ways to Gain Control
Post surgery, after having the vitallium plate inserted to replace the missing piece of skull. The hair on the top of my head was just starting to grow back. When I had my head injury at 15 years of age, I was confused about what I could and couldn’t do. There was a period of …
My Inspiration to Overcome Challenges: I can and I will
My Grandma Lil, right, and my mum. My Grandma Lil was, and still is, an inspiration to me.   As a young kid I used to spend a lot of time with her, Grampy Joe and Uncle Mike. I remember many outings to watch our local soccer team together. They even took me to the cup finals at Wembley London, when our team Swindon …
The Importance of Sleep
Most neurologists will tell their patients who have epilepsy that they should take care to get quality sleep every night since sleep deprivation is thought to be a trigger for seizures in some. More generally, sleep deprivation significantly compromises the ability to think clearly. Indeed, many man-made disasters have sleep deprivation as a contributing factor: the  Challenger space shuttle explosion, the Chernobyl nuclear disaster, the Exxon Valdez oil spill, to name a few. …
Challenging the Epilepsy Stigma
I kept my epilepsy disorder hidden for several years, once we determined the right combination of medications to keep it controlled. Anyone who knew about my injury also knew about the result, but as my life progressed and I went on to university and then into my career, I found that unless I brought it up, no one …

The One More Step Challenge: Are you able to take one extra step to do something you haven’t done before, with the necessary guardrails in place?

Celebrate our global community of virtual shipmates who will take their own steps on a personal voyage towards living a fuller life.

The Sail For Epilepsy voyage is one that will cross the world’s oceans. We are all on a journey: between port stops or life’s challenges.

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