This past week we had the pleasure of meeting members of the epilepsy communities in Burnaby, British Columbia, Canada and the greater Seattle area in […]
Category: Living With Epilepsy
EFNE Sailing Camp – 2023
Last week, on a sunny Thursday, Phil joined Epilepsy Foundation New England at their annual sailing camp in Newport, Rhode Island. This camp is held […]
Communication through unspoken symphony
We recently became aware of an alternative opportunity for self-expression. We decided to participate in this intriguing project. The idea behind unspoken symphony is to […]
Purple Day 2023
Celebrated annually on March 26, Epilepsy Awareness Day, or Purple Day, was created to increase the public’s understanding of this brain disorder and to eliminate […]
Epilepsy Stigma: Ignorance, Prejudice, Discrimination
In my life with epilepsy it has been rare that I have experienced discrimination about my disease. I suffered my head accident which caused my […]
Welcome Aboard, Virtual Shipmates!
This spring, we invited people with epilepsy to join our crew as Virtual Shipmates by participating in our One More Step Challenge. We asked, “Are […]
Richie Shane
Richie Shane started having seizures soon after he finished college. After over 3000 seizures and unsuccessfully trying to control them through medication, he underwent 2 […]
Cassandra Lund, Healthcare Professional
You cannot control what happens to you in life, but you can control how you respond to it. I started having seizures when I was […]
Finding a Reliable Mechanic and the Right Tool to Fix Your Brain
Why do people with epilepsy respond to different medications while others are unable to find a medication that controls their seizures? It’s a fascinating question […]
Trudy Robinson, sailor
Like many others, I was not born with epilepsy. I had my first seizure when I was 17 during my senior year of high school. […]