Imagine a future where the ketogenic diet—a well-known treatment for difficult-to-control seizures—could be replaced by a pill. Such a pill would provide the same seizure-reducing […]
Category: Living With Epilepsy
From Tall Ships to Tennis: My Connection to Sail For Epilepsy
Believe it or not, I first came across Sail For Epilepsy through my love of tall ships and sea chanteys. In undergrad, I volunteered at […]
It’s Not What You Can’t Do — It’s What You CAN Do
A journey of adventure, resilience, and finding purpose beyond epilepsy. In this blog, Sean, (a Virtual Shipmate who lives with epilepsy), shares his incredible journey […]
Empowered by Sail for Epilepsy: A Dream Realized
I am writing to express my deepest gratitude and support for the Sail for Epilepsy Program. Thanks to the generous grant provided by this incredible […]
Empowering Epilepsy Communities: Stories of Inspiration and Connection from Burnaby to Seattle
This past week we had the pleasure of meeting members of the epilepsy communities in Burnaby, British Columbia, Canada and the greater Seattle area in […]
EFNE Sailing Camp – 2023
Last week, on a sunny Thursday, Phil joined Epilepsy Foundation New England at their annual sailing camp in Newport, Rhode Island. This camp is held […]
Communication through unspoken symphony
We recently became aware of an alternative opportunity for self-expression. We decided to participate in this intriguing project. The idea behind unspoken symphony is to […]
Purple Day 2023
Celebrated annually on March 26, Epilepsy Awareness Day, or Purple Day, was created to increase the public’s understanding of this brain disorder and to eliminate […]
Epilepsy Stigma: Ignorance, Prejudice, Discrimination
In my life with epilepsy it has been rare that I have experienced discrimination about my disease. I suffered my head accident which caused my […]
Welcome Aboard, Virtual Shipmates!
This spring, we invited people with epilepsy to join our crew as Virtual Shipmates by participating in our One More Step Challenge. We asked, “Are […]